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Your Questions About Carnitine Deficiency

July 2, 2012
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Lizzie Your Questions About Carnitine Deficiency

Lizzie asks…

Have any long-range side effects ( good or bad) been mapped for acetyl-l carnitine?

I have had acetyl-l-carnitine recommended as a memory aid, and am wondering if it is safe to use if I have not experienced any of the deficiencies described as an indication of the product. In other words, can one be harmed by taking it?

admin answers:

Apparently acetyl-l-carnitine has some small possible minor side effects as well as some benefits

Side Effects
1. Increase in blood pressure
2. Faster heartbeat
3. Fever and possible rash
4. Large amounts can lead to diarrhoea
5. Can cause nausea/vomiting, headache, bladder irritation or infection, unusual body odour, stuffy nose
6. Possibility of restlessness and difficulty sleeping due to the nature of the drug.

Benefits
1. It has a role in energy production and therefore a role in weight control
2. It can enhance cellular energy in the brain
3. It can alleviate the effects of depression
4. Can help to prevent cataracts
5. Can help those in a physically demanding job/hobby
6. Some studies have found evidence that acetyl-l-carnitine, might be helpful in Alzheimer’s disease
7. Uncontrolled studies suggest that L-carnitine or acetyl-L-carnitine may be helpful for improving sperm function.
8. Weak evidence also suggests that carnitine may be helpful for decreasing the toxicity of AZT (a drug used to treat AIDS).

Safety Issues
L-carnitine in its three forms appears to be quite safe. However, individuals with low or borderline-low thyroid levels should avoid carnitine because it might impair the action of thyroid hormone.
Individuals on dialysis should not receive this (or any other supplement) without a physician’s supervision. The maximum safe dosages for young children, pregnant or nursing women, or those with severe liver or kidney disease have not been established.

Interaction Drug Side Effects You Should Know About
If you are taking;
• Antiseizure medications, particularly valproic acid (Depakote, Depakene) but also phenytoin (Dilantin): You may need extra carnitine.
• Thyroid medication: Do not take carnitine except under a physician’s supervision

Like any drug, the possible side effects will affect people differently – due to metabolic factors – speak to your doctor for more information

Nancy Your Questions About Carnitine Deficiency

Nancy asks…

Has anyone had a someone with muscular dystrophy.?

My husband has carnitine deficiency and is doing very badly. Has anyone gone through this before and what should I expect

admin answers:

Muscular Dystrophy is a general term for several forms of dystrophies. The most common form is Duchene Muscular Dystrophy. Others are like Becker, Limb-girdle, Myotonic, and Congenital Muscular Dystrophy, just to name a few. They all seem to be caused by a genetic defect that causes a decrease in the production of dystrophin in the muscle, which leads to necrosis of the muscle. All of these various muscular dystrophies will have different clinical courses and affect different muscle groups. What you will expect is your physician can only sit back and watch because they do not have the magic bullet for this one. What you can do is start a regiment of healthy low glycemic meals (I can supply recipes) next a high quality supplement in high dose (it gives his God made body the ability to defend itself) next if you can walk 20-30 minutes a day. Contact me through my site for the specifics. Help is here.

Robert Your Questions About Carnitine Deficiency

Robert asks…

Starting a foundation?

I have hypoglycemia, particularly a carnitine deficiency. I want to start a foundation for those who have the same problem. I know there is already a Hypoglycemia Foundation, but I want to start one particularly for those with a carnitine deficiency, because there is a medicine for it, but that many might not be able to afford. It transforms the lives of those who need it, so I believe this is really a great cause. How would I go about starting this foundation?

admin answers:

The laws on starting the nonprofit company vary by state. There are a lot of services online that will do that for you, but it’s not hard to do it yourself. Look it up on your state’s secretary of state homepage. You can also found it in another state if you like their laws better – delaware is popular if i recall correctly.

Once you start your corporation you’ll need to get 501c3 status, which means filling out paperwork and sending money to the irs.

Once you have that you’ll be eligible for all sorts of grants from other foundations. If you can you might want to hire a grant writer, or recruit an experienced volunteer for that.

Side note – most (all?) pharmaceutical companies already have programs to help people who can’t afford their meds. You can probably check with the company about that.

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